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What is a bleeding disorder ? ? ?
Mouth Bleeds
Imagine your child falling over, cutting his lip, and the blood continues to ooze for weeks?
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Nose Bleeds
What do you do when your child has a nose bleed that has been going on for months on end?
Limb Bleeds
How would you feel watching your child sitting in his wheelchair whilst his friends climb trees?
Surgery Bleeds
Ever wondered why your child is still bleeding after what should be a simple surgery?
Has your sister, mother, or wife bled excessively during menstruation or childbirth?
Excessive Bleeding in Women
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Sounds all too scary right?
Ever heard of
HAEMOPHILIA
VON WILLEBRAND DISORDER (vWD)?
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Both are life-long bleeding disorders that can affect a person's quality of life without treatment.
A person with HAEMOPHILIA often experiences internal bleeding, as one of the essential clotting factors in the blood is lacking. This can cause a wide range of bleeding episodes, usually into the joints or muscles resulting in pain and swelling. Over a period of time bleeding into joints and muscles can cause permanent damage such as arthritis, chronic pain and joint damage which would require painful surgery to treat.
In someone with VON WILLEBRAND DISORDER (vWD), platelets are not able to stick together efficiently to prevent bleeding. Symptoms may include frequent nose and gum bleeds, bleeding after dental surgery, easy bruising, heavy menstrual periods or severe bleeding after surgery.
Bleeds in both disorders can occur spontaneously, or as a result of trauma or injury such as a fall or knock. The bleeds are treated through an infusion of the clotting factor by intravenous injection. In severe cases, clotting factors are needed on a daily basis to help prevent bleeds. Currently, there is NO CURE.
Read our Family Stories to see what life is like living with a bleeding disorder:
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