Community | Inclusion | Awareness
"Fear is what stops you,
courage is what keeps you going."
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The RED Trail is all about fostering a sense of community, inclusion and awareness, supporting families with chronic disorders in Australia.
WHO ARE WE?
I am a mother and full-time carer to my teen son, Jayden, who lives with a severe bleeding disorder, complicated by chronic inhibitors. This rare condition resulted in frequent hospitalisations as well as numerous ICU admissions over a 15-year period. Jayden also struggles with multiple disorders including autism, asthma and other health complications.
I represent our bleeding disorder community as a female bleeder with over 40+ years experience understanding what life is like with a bleeding disorder, especially with multiple chronic conditions.
My role is to provide support and a safe place to connect with fellow parents/carers/PwBD so we all do not feel alone on this journey.
My son, Jayden came up with the name ‘The RED Trail’ to which we agreed on this name as the “branding” to run our events.
Our goal was to inspire others living with a chronic disorder to 'NEVER GIVE UP'.
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We successfully hosted the walks two years in a row in 2014 and 2015 raising a total of over $23,000!
HOW WAS
THE RED TRAIL
CREATED?
In 2014, my son and I decided to host the very first Haemophilia Walk in NSW to raise awareness and funds for our bleeding disorder community.
I bring my experience and knowledge to the fundraising and events sector as I have been involved in several fundraising events for many other charities, raising over $2.5 million dollars in donations, resulting in greater awareness in the community about chronic disorders.
Our first event in 2014 managed to raise $8000 for our community.
As it was such a great success, I enlisted a group of passionate friends to help me with The RED Trail to grow our brand and awareness.
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Together with our amazing team, we almost doubled our 2014 fundraising goals to just over $15,000 in 2015!
As of 2016, The RED Trail members all decided we were no longer raising funds for Haemophilia Foundation NSW, however we were to continue raising awareness and host social meet ups to support our chronic disorder families across NSW.
The RED Trail even made it to several media publications, including The Daily Telegraph, The Australian, Southern Courier, Mamamia, Nudie, We Bleed Australia and News Local!
Unfortunately, with the stress of caring for a young child with a severe bleeding disorder and juggling my various volunteer roles with very little sleep, it took a toll on my health, and I was eventually diagnosed with fibromyalgia, hence I took a temporary break from running events and activities for The RED Trail.
THE RED TRAIL
REBORN!
In 2018 I decided to relaunch The RED Trail’s activities and do my part for our bleeding disorder community. We managed to host our first Social MeetUp for that year in July, meeting newly diagnosed families, providing them with hope and a warmly welcomed support, which was a pleasant boost to continuing my work in our community.
During the year, we had plans in place to run our annual event The RED Trail Social FeastUp, to support Bleeding Disorders Awareness Week (HFA's national awareness campaign throughout Australia).
We had set a date for 13th October 2018. Unfortunately, due to wet weather, we had to cancel that event.
IT IS NOW 2019!
Our first Social MeetUp for the year was on the 24th February 2019 at Ross Park Playground, Avoca Beach.
Our events are all about fostering a sense of community, inclusion and awareness.
The social event was a great drive to the beautiful Central Coast for a casual day out to enjoy some fresh air and a relaxing picnic.
The RED Trail came together to provide a place for parents, carers, PwBD, friends & families to connect with others going through a similar journey.
We plan on hosting regular social meetups throughout the year and welcome everyone to join us to meet inspiring families living with a chronic medical condition.
If you would like to make a difference to support The RED Trail,
here's how you can help create a positive change: